HD Research

Enroll in a Clinical Trial for Huntington’s Disease


Through clinical trials, researchers are testing new ways to detect, treat and prevent Huntington’s disease. Recruiting clinical trial participants in a timely manner, as well as maintaining their participation in trials, is the greatest obstacle to developing the next HD treatment.

The entire HD community needs your help. Without participation, finding a cure is virtually impossible. Until a cure exists, the best possible way to fight back against HD is to participate in the research process. People with HD, caregivers and healthy volunteers are all needed today to participate in all aspects of HD and research.

When you join a clinical trial, you have an opportunity to participate in vital research that could change the course of this disease and improve the lives of all those it affects. Your participation in clinical trials provides hope for today and promise for a future free of HD.

If you are thinking about joining a clinical trial, talk with your family and doctor about what is right for you. Share the HD Trial Finder website or HD Trial Finder brochure with them so they understand how to use the service and the types of HD-related clinical trials being conducted across the country.  http://hdsa.org/hd-research/enroll-in-a-clinical-trial/

In the U.S., 100% of the proceeds from Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington’s, a memoir/nonfiction book, is being donated to HDSA. Outside the U.S., the proceeds are donated to a Huntington’s organization in the country where the book is purchased.

To purchase the book, go to Therese’s website:  http://www.theresecrutchermarin.com and Amazon    B&N     Kindle     Kobo      Nook 

To listen to HDSA CEO Louise Vetter talk about the importance of enrolling, please see:   https://youtu.be/Oc2POI_VUBU  
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