Taking Care of Yourself

Free Online Huntington’s Disease Support Group

Did you know Woody Guthrie had HD? He did!

Huntington’s disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

Medical News Today Article: What is HD?  

HDSA Online Caregiver Support Group     

This HDSA group is open to caregivers to a loved one with HD who does not have access to an in person group because of distance, time constraints or whatever.  If it is easier for you, please register. The group will meet monthly with a changing leader and changing members due to expanded geography. To sign up:   https://www.supportgroupscentral.com/join_as.cfm?cid=27

We Can Never Lose HOPE………...

I will be selling my nonfiction book Watching Their Dance at the HDSA Annual Convention in Los Angeles this week.  HDSA is receiving 100% of the proceeds.

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